Health professionals, researchers, patient organisations and policymakers gathered in Lisbon on 8 & 9 October for the 2nd European Reference Networks (ERN) Conference.
The Directive 2011/24/EU on the application of patients’ rights in cross-border healthcare strengthens co-operation between highly specialised healthcare providers across the European Union by the establishment of a system of European Reference Networks (ERNs). The legal framework of ERNs adopted by the Commission entered into force on 27 May, 2014, after an exhaustive consultation process with national authorities, experts, and stakeholders. ERNs will help to provide affordable, high-quality and cost-effective healthcare to patients with conditions requiring a particular concentration of resources or expertise. They will strive to improve access to the best possible expertise and care available in the EU for patients with rare diseases and complex conditions.
The first call for ERNs is expected in early 2016 and interested parties are already
preparing for the call. Since 2008, the Genodermatoses Network has been identified by the European Commission (EC) as a pilot project for a European Reference Network (ERN) for Rare Diseases. In partnership with Geneskin and EB-Clinet, the Genodermatoses Network is preparing a project proposal for a ERN on Rare and Undiagnosed Skin Disorders.