February 28th is Rare Disease Day!
Rare Disease Day is an annual, awareness-raising event co-ordinated by EURORDIS at the international level and National Alliances of Rare Disease Patient Organisations at the national level. View and share the official video of Rare Disease Day.
This year’s slogan is Rare Disorders without borders!
Genodermatoses Network fully supports this action. Get involved too!
More information on Rare Disease Day website.
Ichthyosis Awareness Month 2019 : more than ever needed