This meeting will be held in the context of a European project focused on the management of genodermatoses, "Together Against Genodermatoses" (TAG). The goal of the event is to define the best available strategy for patients’ daily life: health care, nursing care and social care will be taken into consideration. In order to provide advanced care to children and their families and guarantee continuity of care, all actors involved in this process have been invited to participate: patients, Patient Associations, Scientific Societies, Doctors and Nurses from different countries, and Public Authorities.
To learn more about the programme, please click here.
Ichthyosis Awareness Month 2019 : more than ever needed