French President Nicolas Sarkozy confirmed the renewal of the country’s rare disease national plan during a European symposium on rare disorders taking place in Paris on 10 October. The Gallic leader stated that the particulars of the plan will be ironed out in 2009 and enter into action by 2010 at the latest. He mentioned continuing funding for the designated rare disease centres of reference, of which France presently has 132. The current rare disease plan, which came into being in 2005, is due to expire at the end of this year. President Sarkozy also declared his support for the EC Communication on rare diseases, considering it a priority under the French presidency of the EU.
Ichthyosis Awareness Month 2019 : more than ever needed