The Orphanet Journal of Rare Diseases publishes an article on rare diseases grouping for efficient European Reference Networks (ERN). The authors address some of the questions that surround the establishment of ERN. They go through the pilote projects initiated before the European Commission Call on March 2016. Among them, the pilote project TAG (Together Against Genodermatoses) of the Genodermatoses & Rare Skin Diseases Network co-funded from 2008 to 2011 by the European Commission as a pilote European Reference Network for Rare Diseases (TAG grant agreement 2007 335).
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The context for the thematic grouping of rare diseases to facilitate the establishment of European Reference Networks