The second European workshop on ERN recommendations and criteria in rare skin diseases will be held on 10 October 2014 in Amsterdam, Netherlands.
- Update on the EU policy on European Reference Networks
- New structure of the ERN for Genodermatoses according to the Commission Delegated Decision 10.3.2014 setting out criteria and conditions that European Reference Networks and healthcare providers wishing to join a European Reference Network must fulfil
- Objectives and tasks for each ERN for Genodermatoses group
- Update on the Genodermatoses Network activities
Ichthyosis Awareness Month 2019 : more than ever needed