At the European level, Rare Disease Day 2012 highlighted rare diseases as a model of EU solidarity in today’s crisis-stricken Europe. In line with this initiative, EURORDIS has organised a symposium with the European Commission, in Brussels on February 29, to showcase the successes achieved over the last decade and to discuss the way forward. The TAG network has been presented by Prof. Dubertret, President of Fondation René Touraine and Ms. Zmazek, President of Debra Croatia. The presentation can be viewed online.
Ichthyosis Awareness Month 2019 : more than ever needed