The European Conference on Rare Diseases & Oprhan Products is organized in Berlin from 8 to 10 May 2014.
The Genodermatoses Network poster will be presented on Saturday 10 May, 2014. Leena Bruckner-Tuderman (Germany), Smail Hadj-Rabia (France), Grabiela Pohla-Gubo (Austria) will present their centers and discuss their experience on:
- Friday 9 May from 14.00 to 15.30: Theme 1 - Centres of Expertise (Part I) - Best Practices (example 1) - Specialised centre for epidermolysis bullosa, Leena Bruckner-Tuderman,
- Saturday 10 May from 9.00 to 10.30: Theme 1- European Reference Networks - The example of the Austrian Epidermolysis Bullosa Centre and how it links into a broader network, Gabriela Pohla-Gubo.
See the Genodermatoses Network poster at the ECRD 2014:
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