European Reference Network for Rare Skin diseases (ERN-Skin)

The ERN application was born from a joint action of 3 EADV task forces and the FRT Rare Skin Diseases Network active in the field for more than 10 years. After being approved by the Board of Member States, the ERN-Skin began its journey on March 9, 2017 along with the 23 other ERNs. The René Touraine Foundation supports the ERN and participates in its coordination.

On March 2017 were launched 24 European Reference Networks (ERNs) specialised in rare or low-prevalence complex diseases, marking the start of a new era for cooperation in the field of health. The aim was to offer the nearly 30 million EU citizens suffering from these diseases requiring highly specialised treatment, the opportunity to benefit from high-quality and cost-effective care everywhere on the European territory.

In that respect each of the ERNs covers a specific medical field involving healthcare providers located in Europe to facilitate discussion on complex or rare diseases and concentrate knowledge and resources.

The European Reference Network gathering the 24 ERNs and their reference centres, involves more than 900 healthcare units from over 300 hospitals in 26 EU countries.

More information : https://ern-skin.eu/