The Genodermatoses & Rare Skin Disorders Network’s Strategy for 2018-2021
Our 2018-2021 objective is to work with other networks in the field :
To strengthen national networks in each partner country outside the EU and to develop regional projects in the Mediterranean, Middle East, Asia and South America,
- To organize training courses for medical & paramedical teams,
- To develop the interactive directory for patients and professionals,
- To improve access to drugs, cosmetics and medical devices,
- To foster our communication.
A fruitful collaboration between the ERN-Skin and Mediterranean, Middle Eastern, Asian and South American networks should create synergies benefitting all patients. Fostering such links presents an important and exciting challenge for our future.
Les ichthyoses ou la maladie face à la discrimination