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Rare Skin Diseases Network

• Art Contest
  • Art Contest
• Our Network
  • Brief history
    • An action by Fondation René Touraine
    • An incentive for national initiatives
    • A key player in European cooperation
  • Our Missions
    • Meeting the needs of patients
    • Network’s activities since 2003
    • Network Achievements
    • 2018-2021 objectives
    • Award and funding
  • Scientific committee
    • Scientific Committee
  • European and International Cooperation
    • European and International Cooperation
  • European Reference Network for Rare Skin diseases (ERN-Skin)
  • Meet us...
    • Meet Christine Bodemer, the President of the Genodermatoses & Rare Skin Disorders Network Scientific Committee
    • Meet Geske Wehr, the Chief Executive of the European Network for Ichthyosis
    • Meet John Dart, the COO of Debra international
• Rare Skin Disorders
  • What are genodermatoses & rare skin disorders ?
    • Genodermatoses & Rare Skin Disorders - a public health priority
  • Epidermolysis Bullosa
    • Discover Epidermolysis Bullosa
    • Multicentre consensus recommendations
  • Ectodermal Dysplasia
    • Hypohidrotic Ectodermal Dysplasia (ED)
    • ED recommendations
  • Ichthyosis
    • Inherited Ichthyosis
    • Ichthyosis recommendations
  • Xeroderma Pigmentosum
    • Discover Xeroderma Pigmentosum (XP)
    • XP recommendations
  • Incontinentia pigmenti
    • Discover Incontinentia Pigmenti (IP)
    • IP recommendations
• Events
  • Meetings
    • Meetings
  • Genodermatoses & Rare Skin Disorders Network Conference - Reports
    • Reports
  • Art Contest
    • A-2022 Art contest winners !
    • B-2021 Art Contest winners
    • C-2020 Art Contest winners
    • D- 2019 Art Contest winners
    • E- 2018 Art Contest winners
    • F- 2017 Art Contest winners
    • G- 2016 Art Contest winners
    • H-2015 Art Contest winners
  • Digital International Netherton Expert Meeting
    • Suzanne Pasmans and other members of the...
  • The 5EDA on albinism goes virtual!
    • Dates, program, registration
• Legal Disclaimer
  • Privacy Policy
  • Privacy policy
• Newsletters