An international network to foster national initiatives
Genodermatoses & Rare Skin Disorders are the subject of a long-standing and efficient collaboration in genetics in the European, Mediterranean and the Middle-Eastern countries. Meanwhile, many actions have been undertaken to improve health care and social life of the patients.
The Genodermatoses & Rare Skin Disorders Network aims at supporting these actions through an international network. Fondation René Touraine has launched this cooperation project thanks to the support of Laboratoires Pierre Fabre and the involvement of dermatologists from the European, Mediterranean and Middle-Eastern countries.
From 2008 to 2011, the Genodermatoses Network was co-funded by the European Union, as a pilot network for European Reference Network for Rare Diseases : Together
Against Genodermatoses (TAG-2007 335).
Between 2013 and 2017, the Genodermatoses & Mediterranean Network received support from the European Academy of Dermatology and Venereology.
In 2016, in order to reflect its expansion, the FRT Genodermatoses & Mediterranean Network changed its name to the Genodermatoses & Rare Skin Disorders Network.
Ichthyosis Awareness Month 2019 : more than ever needed